Callan: “How old are you bud–four. What is your favorite color? ummm blue”.
“Call\an is a very highly energetic four-year -old,” said Callen’s mom Jennier Dockter.
Callan Dockter is just a normal kid bouncing off the walls — but he lives with a rare condition—that’s affecting his brain from expanding the right way.
“When the brain is growing the skull bones can not shift to allow the brain to fully expand,” said Dockter.
This is known as Saggital Craniosysnostosis.
“It initially started when he was about 6 months old, we noticed that there was a ridge forming at the top of his head from ear to ear like a head band,” said Dockter.
His parents brought their concerns to his pediatrician and were told not to worry about it, but after yearly visits his mom knew it just wasn’t right.
“Then over this last winter we noticed in the front it’s called frontal bosining a large bulge started to form in his skull,” said Dockter.
That’s when they finally got the diagnosis.
“If they are over the age of one typically endoscopic can not be done because the brain has become larger within the cavity so more risk factors are involved,” said Dockter.
Finding a surgeon who will treat Callan has been quite the battle.
“Because we are in North Dakota we do have limited physicians that deal with specialties here and unfortunately Craniosynostosis is not something that’s treated within our state,” said Dockter.
But after a long search they found one in Texas, however making surgery happen will be costly.
“My husband and I are both self employed,”said Dockter.
and state guidelines require them to obtain Medicaid, but Medicaid is refusing to cover any out of state costs– leaving the Dockters to cover the costs on their own.
“–it’s not right when you’re dealing with something like this weather is be yourself as a patient or your loved one or a child in this case to be stressed about treating your condition and then to have to fight health care on top of that,” said Dockter.
Dockter thinks the healthcare system needs to change, but even if it doesn’t this family refuses to give up the fight for Callan.
A benefit breakfast has been set up for Sunday , November 4th at the Rugby Eagles.
A GoFundMe page has also been started:
A local donation account has also been set up at North Star Community Credit Union in Rugby under “Callan Dockter Benefit”. You can also make a donation at any North Star Community Credit Union.