There is no cure, and less than 1 percent of people who develop one survive beyond five years.
“It is a devastating disease. You have decreased ability to swallow, sometimes vision loss, decreased ability to talk. Eventually difficulty with breathing,” said Dr. Virginia Harrod, Roxli’s doctor at Dell Children’s Medical Center in Austin.
Roxli was given months to live. As she went through weeks of radiation, her parents Scott and Gena Doss prayed for a miracle.
“We got it,” Gena said.
“Praise God, we did,” Scott added.
Typically, radiation is a life-extending treatment and not a cure. But just over two months after being diagnosed, the tumor appeared to have completely gone away.
Doctors can’t explain the remarkable response.
“It was actually unbelievable. The tumor is undetectable on an MRI scan, which is very unusual,” Dr. Harrod said.
Doctors acknowledge the tumor may return, but for now Roxli is just as active as she ever was. For the Doss family, Christmas came a little early this year.